Being a Caregiver in the Palliative Care Unit in the Pandemic: Who Can Do It Better?
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Keywords

Caregiver
COVID-19
Knowledge
Measures
Pandemics
Quality-of-life

Categories

How to Cite

Çakmak, G., Öztürk, E., & Öztürk, Z. A. (2021). Being a Caregiver in the Palliative Care Unit in the Pandemic: Who Can Do It Better?. Iranian Red Crescent Medical Journal, 23(8). https://doi.org/10.32592/ircmj.2021.23.8.950

Abstract

Background: During the Coronavirus Disease-2019 (COVID-19) pandemic, palliative care units and nursing homes became risky in terms of infection transmission. The measures that are taken in the general population have also been strictly applied for caregivers. However, to achieve success, the personal compliance of the caregivers is as important as setting the rules.

Objectives: This study aimed to evaluate the demographic characteristics, knowledge levels, and attitudes towards the measures taken for pandemics of the caregivers who were caring for their patients in the palliative care unit. It was also attempted to evaluate the relationship between these parameters and their quality of life (QOL).

Methods: The level of knowledge and the level of agreement with the measures with questions prepared by three physicians working in the palliative care unit were assessed in this study. The QOL was also evaluated using the 3-level version of EQ-5D (EQ-5D-3L).

Results: Education, employment, smoking, as well as parental and marital status, were found to be related to a high level of knowledge. It has been shown that the level of knowledge is higher in female caregivers and those who were caregiving for less than three years. The caregivers of Alzheimer's disease patients were also revealed to know more about the COVID-19 pandemic. Single, male, employed, smoking, and experienced less than three years caregivers were seemed to have a higher level of agreement with the measures. In addition, it was concluded that the QOL was positively correlated with the level of knowledge and negatively correlated with the compliance of the measures.

Conclusion: It is essential to know the characteristics and beliefs of the caregivers in pandemic management in palliative care; accordingly, more studies should be conducted on this issue.

https://doi.org/10.32592/ircmj.2021.23.8.950
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References

  1. Ciotti M, Ciccozzi M, Terrinoni A, Jiang WC, Wang CB, Bernardini S. The COVID-19 pandemic. Crit Rev Clin Lab Sci. 2020;57(6):365-88. doi: 10.1080/10408363.2020.1783198. [PubMed: 32645276].
  2. Filocamo G, Mangioni D, Tagliabue P, Aliberti S, Costantino G, Minoia F. The COVID-19 resource centre is hosted on Elsevier Connect. New York: The Company’s Public News and Information; 2020.
  3. Perrotta F, Corbi G, Mazzeo G, Boccia M, Aronne L, D'Agnano V, et al. COVID-19 and the elderly: insights into pathogenesis and clinical decision-making. Aging Clin Exp Res. 2020;32(8):1599-608. doi: 10.1007/s40520-020-01631-y. [PubMed: 32557332].
  4. World Health Organization. World report on ageing and health. Geneva: World Health Organization; 2015.
  5. Wu Z, McGoogan JM. Characteristics of and important lessons from the coronavirus disease 2019 (COVID-19) outbreak in China: summary of a report of 72 314 cases from the Chinese center for disease control and prevention. JAMA. 2020;323(13):1239-42. doi: 10.1001/jama.2020.2648. [PubMed: 32091533].
  6. Rodriguez-Gonzalez CG, Chamorro-de-Vega E, Valerio M, Amor-Garcia MA, Tejerina F, Sancho-Gonzalez M, et al. COVID-19 in hospitalised patients in Spain: a cohort study in Madrid. Int J Antimicrob Agents. 2021;57(2):106249. doi: 10.1016/j.ijantimicag.2020.106249. [PubMed: 33259918].
  7. Daya A. P, Sarkar S, Kar SS. Needs of the caregivers of people requiring palliative care in an urban area of Pondicherry, South India. Int J Community Med Public Health. 2018;5(6):2259. doi: 10.18203/2394-6040.ijcmph20181973.
  8. Ursachi G, Horodnic IA, Zait A. How reliable are measurement scales? External factors with indirect influence on reliability estimators. Proc Econ Financ. 2015;20:679-86. doi: 10.1016/s2212-5671(15)00123-9.
  9. Zhou T, Guan H, Yao J, Xiong X, Ma A. The quality of life in Chinese population with chronic non-communicable diseases according to EQ-5D-3L: a systematic review. Qual Life Res. 2018;27(11):2799-814. doi: 10.1007/s11136-018-1928-y. [PubMed: 29980994].
  10. Kahyaoğlu Süt H, Ünsar S. Is EQ-5D a valid quality of life instrument in patients with acute coronary syndrome? Anatol J Cardiol. 2011;11(2):156-62. doi: 10.5152/akd.2011.037.
  11. Khanna R, Jariwala K, Bentley JP. Health utility assessment using EQ-5D among caregivers of children with autism. Value Health. 2013;16(5):778-88. doi: 10.1016/j.jval.2013.04.007.
  12. Lahoz R, Proudfoot C, Fonseca AF, Loefroth E, Corda S, Jackson J, et al. Caregivers of patients with heart failure: burden and the determinants of health-related quality of life. Patient Prefer Adherence. 2021;15:1153-64. doi: 10.2147/PPA.S297816. [PubMed: 34079236].
  13. Levy E, Delvin E, Marcil V, Spahis S. Can phytotherapy with polyphenols serve as a powerful approach for the prevention and therapy tool of novel coronavirus disease 2019 (COVID-19)? Am J Physiol Endocrinol Metab. 2020;319(4):E689-708. doi: 10.1152/ajpendo.00298.2020. [PubMed: 32755302].
  14. Doğan A. Household ICT usage survey. Ankara, Turkey: Turkish Statistical Institut; 2015.
  15. Nayir E, Tanriverdi O, Karakas Y, Kilickap S, Serdar Turhal N, Avci N, et al. Tendency of cancer patients and their relatives to use internet for health-related searches: Turkish Oncology Group (TOG) Study. J BUON. 2016;21(3):714-9. [PubMed: 27569068].
  16. Kaleta D, Makowiec-Dabrowska T, Polańska K, Dziankowska-Zaborszczyk E, Drygas W. Tobacco smoking and other negative lifestyle behaviors among economically active individuals. Med Pr. 2009;60(1):7-14. [PubMed: 19603691].
  17. Salvatore JE, Gardner CO, Kendler KS. Marriage and reductions in men's alcohol, tobacco, and cannabis use. Psychol Med. 2020;50(15):2634-40. doi: 10.1017/S0033291719002964. [PubMed: 31685061].
  18. Chan EY, Glass G, Chua KC, Ali N, Lim WS. Relationship between mastery and caregiving competence in protecting against burden, anxiety and depression among caregivers of frail older adults. J Nutr Health Aging. 2018;22(10):1238-45. doi: 10.1007/s12603-018-1098-1. [PubMed: 30498832].
  19. Elazhary H, Noorwali A, Zaidi N, Alshamrani R, Aljohani M, Khan D, et al. Knowledge about diabetes and its effect on quality of life among diabetic patients in king Abdulaziz University Hospital, Jeddah. J Adv Med Med Res. 2018;26(3):1-11. doi: 10.9734/jammr/2018/40083.
  20. Tsai YH, Lou MF, Feng TH, Chu TL, Chen YJ, Liu HE. Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurol. 2018;18(1):50. doi: 10.1186/s12883-018-1057-9. [PubMed: 29699521].
  21. Bener A, Al-Khal A. Knowledge, attitude and practice towards SARS. J R Soc Promot Health. 2004;124(4):167-70. doi: 10.1177/146642400412400408. [PubMed: 15301314].
  22. Battineni G, Sagaro GG, Chintalapudi N, Di Canio M, Amenta F. Assessment of Awareness and knowledge on novel coronavirus (COVID-19) pandemic among seafarers. Healthcare (Basel). 2021;9(2):120. doi: 10.3390/healthcare9020120. [PubMed: 33503921].
  23. Wolf MS, Serper M, Opsasnick L, O'Conor RM, Curtis L, Benavente JY, et al. Awareness, attitudes, and actions related to COVID-19 among adults with chronic conditions at the onset of the U.S. outbreak: a cross-sectional survey. Ann Intern Med. 2020;173(2):100-9. doi: 10.7326/M20-1239. [PubMed: 32271861].
  24. Singh Gambhir R, Singh Dhaliwal J, Aggarwal A, Anand S, Anand V, Kaur Bhangu A. Covid-19: a survey on knowledge, awareness and hygiene practices among dental health professionals in an Indian scenario. Rocz Panstw Zakl Hig. 2020;71(2):223-9. doi: 10.32394/rpzh.2020.0115. [PubMed: 32519827].
  25. Khader Y, Al Nsour M, Al-Batayneh OB, Saadeh R, Bashier H, Alfaqih M, et al. Dentists' awareness, perception, and attitude regarding COVID-19 and infection control: cross-sectional study among jordanian dentists. JMIR Public Health Surveill. 2020;6(2):e18798. doi: 10.2196/18798. [PubMed: 32250959].