The Impact of Educating Parents of Leukemic Children on the Patients’ Quality of Life

AUTHORS

Fatemeh Hashemi 1 , * , N Asadi 2 , N Beheshtipour 2 , M Karimi 3

1 Instructor of Pediatric Nursing Group, Nursing and Midwifery College, Shiraz University of Medical Sci-ences, Shiraz, Iran

2 Nursing and Midwifery College, Shiraz University of Medical Sciences, Shiraz, Iran

3 Hematology Research Center, Nemazee Hospital, Shiraz University of Medical Sci-ences, Shiraz, Iran

How to Cite: Hashemi F, Asadi N, Beheshtipour N, Karimi M. The Impact of Educating Parents of Leukemic Children on the Patients’ Quality of Life, Iran Red Crescent Med J. 2011 ; 13(8):e95920.

ARTICLE INFORMATION

Iranian Red Crescent Medical Journal: 13 (8); e95920
Published Online: August 31, 2011
Article Type: Research Article
Received: July 02, 2019
Accepted: August 31, 2011

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Abstract

Background: The quality of life of children with leukemia is reduced by fear and anxiety of parents after diagnosis, lack of information about the disease, treatments, and care of the child. This study aims to evaluate the effect of educating parents of leukemic children on the patients’ quality of life.

 

Methods: In this interventional study, sixty parents of ALL children who met inclusion criteria were selected using simple random sampling method, and assigned to the experimental and control groups. The study tool included a valid and reliable questionnaire (TNO-AZL), that was filled in through interview by parents before and two months after the intervention for both groups. The first part of the questionnaire included demographic items and the second part (7 dimensions, each with 8 sections) contained questions related to the quality of life. The scores could range between 56 and 280 and a higher score represented a better quality of life. The intervention included three one-hour classes composed of lecture and question-answer sessions which were held for groups of 4-6 participants, accompanied by a booklet.

 

Results: Before the intervention, the quality of life score in the experimental and control groups was 180.83±14.43 and 174.28±20.72, respectively; after the intervention, these figures changed to 226.9±11.76 and 174.41±20.42 respectively. Paired samples T-test proved a significant increase in the quality of life in the experimental group.

 

Conclusion: Parent education successfully increased the quality of life of leukemic children; therefore, parental consultation sessions and educational programs are recommended.

Keywords

Leukemia Children Education Parent Iran

© 2011, Author(s). This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.

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