Document Type : Research articles
Authors
- ÅŸenay Topuz 1
- Asena Taşgıt 2
- Elif Çilesiz 3
- Rüveyda Gökçe 4
- Derya Aycan Ulger 5
- Åžerife Suna OÄŸuz 6
1 1 Assistant Professor, Department of Midwifery, Faculty of Nursing, Ankara University Ankara, Turkey
2 Nurse, University of Health Sciences Zekai Tahir Burak Women's Health Training and Research Hospital, Ankara, Turkey
3 Research Assistant, Department of Midwifery, Faculty of Health Sciences, Amasya University,Amasya, Turkey
4 Midwife, Turkey Republic Ministry of Health
5 Student, Department of Midwifery, Faculty of Nursing, Ankara University
6 Associate Professor, University of Health Sciences Zekai Tahir Burak Women's Health Training and Research Hospital, Ankara, Turkey
Abstract
BackgroundNewborn screening tests can detect numerous congenital diseases that may cause disability or death and be performed first in 2006 in Turkey. Newborn screenings for Phenylketonuria and congenital hypothyroidism have increased in recent years due to the emergence of new diseases. It is essential for healthcare personnel and families to carry out these screening programs in a timely, accurate, and efficient manner. Informing families, particularly mothers, about these screening tests will help more newborn babies benefit from these tests. Therefore, this study aimed to explore mothers views about newborn screening programs in Turkey.
Materials Methods: This descriptive and cross-sectional study included 112 volunteer mothers and was conducted at Zekai Tahir Burak Hospital, Ankara, Turkey, from December 2018 to January 2019.
Results: Although mothers in Turkey were to some extent informed about the screening tests, they did not have sufficient information regarding the objective of these tests. Moreover, the majority of mothers expressed a positive opinion about the tests and stated that they would have these tests done even if they had to pay for them.
Conclusion: Based on the obtained results, although mothers in turkey were not sufficiently knowledgeable about screening tests and their objectives, they expressed positive views about these tests. Therefore, it is recommended that families should be informed about newborn screening tests through mass media, educational environments (pregnancy schools), and screening test centers. Therefore, it is important to organize in-service training for midwives and nurses to raise their awareness in this regard.
Keywords
- Association of Women's Health, Obstetric and Neonatal Nurses. AWHONN position statement. Newborn screening. J Obstet Gynecol Neonatal Nurs. 2016;45(1):135-6. doi: 10.1016/j.jogn.2015.11.004. [PubMed: 26815807]
- Ä°çke S, Genç RE. National newborn screening tests carried out with heel lance and their importance. J Pediatr Res. 2017;4(4):186-90. doi: 10.4274/jpr.22932.
- Infant, child, adolescent follow-up protocols. Ankara: Republic of Turkey Ministry of Health, Public Health Institutions; 2018.
- BaÅŸ N, Turan Z, Uzuner Y. Investigation of the national newborn hearing screening program based on family and health workers’ opinions: a case study. J Qualit Res Educ. 2019;7(1):1-27. doi: 10.14689/issn.2148-2624.1.7c1s.6m.
- Family with Statistics-2016, Report No. 24646. Ankara: Turkey Statistical Institute; 2017.
- Nar MÅž. Medical anthropology: pathological effects of consanguineous marriages. Ankara Univ J. 2012;52:223-40.
- Uslu HS, ZubarioÄŸlu AU, Bulbul A. Selective metabolic screening from a neonatology perspective. J Acad Res Med Jarem. 2015;5(2):39-46. doi: 10.5152/jarem.2015.755.
- Akın B, Genç RE. Developmental dysplasia of the hip and the role of midwives in early diagnosis. Br Med J. 2016;5:166-70.
- Yıldız S, Balcı S, Görak G. The evaluation of taking the Guthrie scan test samples practices and the test results. J Anatolia Nurs Health Sci. 2006;9(1):17-28.
- Küçükyılmaz E, Tahta T. The role of the midwife in the diagnosis of congenital metabolic diseases. 6th International 10th National Midwifery Students Congress, Sivas, Turkey; 2019. P. 80-1.
- DoÄŸruel H, Atalar H, Yavuz OY, UraÅŸ Ä°, Günay C, Saylı UC. To evaluate the incidence of developmental dysplasia of the hip and screening programs in Turkey. J Med Sci. 2008;28(3):357-60.
- Tural Buyuk E. Mothers' knowledge of heel stick blood screening operation applied to their babies. GümüÅŸhane Univ J Health Sci. 2014;3(3):883.
- Evcili F, Demirel G, Yurtsal ZB, Yılmaz EA. The effect on mothers’ knowledge level training of newborn screening test. GümüÅŸhane Univ J Health Sci. 2017;6(1):80-6.
- Evcili F, Cesur B, Yurtsal B, Kaya N. Views of mothers about newborn screening tests and participation status in screening programs. Mersin Univ J Health Sci. 2017;10:25-35.
- Guthrie R. The origin of newborn screening. Screening. 1992;1:5-15. doi: 10.1016/0925-6164(92)90025-z. [PubMed: 11615143].
- Wilcken B, Wiley V. Newborn screening. Pathology. 2008;40(2):104-15. doi: 10.1080/00313020701813743. [PubMed: 18203033].
- Therrell BL, Padilla CD, Loeber JG, Kneisser I, Saadallah A, Borrajo GJ, et al. Current status of newborn screening worldwide: 2015. Semin Perinatol. 2015;39(3):171-87. doi: 10.1053/j.semperi.2015.03.002. [PubMed: 25979780].
- Little CM, Lewis JA. Newborn screening. Newborn Infant Nurs Rev. 2008;8(1):3-9. doi: 10.1053/j.nainr.2007.12.004.
- Arslan A. Children aged 0-1 with parents about the idea of expanded newborn screening program. [Master Thesis]. Istanbul, Turkey Marmara University; 2010.
- Arnold CL, Davis TC, Frempong JO, Humiston SG, Bocchini A, Kennen EM, et al. Assessment of newborn screening parent education materials. Pediatrics. 2006;117(5):320-5. doi: 10.1542/peds.2005-2633L. [PubMed: 16735259].
- Huang MC, Lee CK, Lin SJ, Lu IC. Parental consent for newborn screening in southern Taiwan. J Med Ethics. 2005;31(11):621-4. doi: 10.1136/jme.2004.010074. [PubMed: 16269553].
- Faden R, Chwalow AJ, Holtzman NA, Horn SD. A survey to evaluate parental consent as public policy for newborn screening. Am J Public Health. 1982;72(12):1347-51. doi: 10.2105/ajph.72.12.1347. [PubMed: 7137431].
- Cusworth-Aerts J. Oral and written information about newborn screening should be concise and given to parents by primary prenatal care providers. Evid Based Nurs. 2007;10(1):27. doi: 10.1136/ebn.10.1.27. [PubMed: 17218301].
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